Building a Better System to Support Canadian Family Caregivers (Conversation #3)

Presented by: Caregiver Centered Care

Family caregivers want to establish meaningful relationships with all health and social care providers and advocate for the uniqueness of the people they care for. Being consulted about the care-receiver’s history, preferences, and care needs, being invited to participate in care, and being provided with regular updates help to develop more positive relationships with healthcare providers AND better care for the Canadian receiving care. While family caregivers want to be respected as team members, the desired level of involvement depends on the caregiver. It is therefore important for healthcare providers to be able to discuss role expectations. This webinar aims to answer the question, "What approach should we be using to build partnerships between healthcare providers and family caregivers?"

Speaker: Dr. Yona Lunsky - Healthcare Providers and Family Caregivers as Partners in Care

Dr. Yona Lunsky is a Senior Scientist and Director of the Health Care Access Research and Developmental Disabilities (H-CARDD) Program at CAMH (the Centre for Addiction and Mental Health). She is also a Professor in the Department of Psychiatry at the University of Toronto and director of the Azrieli Centre for Adult Neurodevelopmental Disabilities and Mental Health. Dr. Lunsky's work focuses on the emotional health of people with developmental disabilities and their families. See: "This is About my Health."

Speaker: Barb Maclean “Strengthening Family Partnerships in the Care Team”

Barb Maclean, Executive Director of Family Caregivers of British Columbia, is the driving force behind what makes the Family Caregivers of British Columbia a leader in supporting and partnering with family caregivers. She learned first-hand what it’s like to juggle work, a young family and caregiving when she supported her family during her mother's fight with cancer. Two innovative ways in which Family Caregivers of British Columbia is working toward family caregiver and health provider partnerships can be read about in Strengthening Family Partnerships in the Care Team and "Circle of Care: Supporting Family Caregivers in BC."

Jaime Winkler, Family Caregivers Partnering with Health Providers.

Jaime Winkler is a Research Engagement Strategist, Knowledge Broker, and Community Engagement Facilitator in Family Centered Service. She is the Network Coordinator for Cerebral Palsy Alberta Representing Cerebral Palsy of Canada Network, the President of the Saskatchewan Cerebral Palsy Association, and a board member for the Saskatchewan Disability Income Support Coalition. As mom to Neurodiverse twins Bella and Mindy, Jaime’s key methodology is an equalitarian, individualized and family centered approach to research and care through knowledge translation and family centered service.

What are the key elements needed to support family caregivers? Have your say by registering to Participate in a National Canadian Conversation.

September 20, 2022 - Recognizing the Family Caregiver Role. / “How do we improve recognition of family caregivers and the importance of the family caregiver role?”

October 4, 2022 - The Role of Education of Healthcare Providers to Support Family Caregivers: Elements of Effective Education. / “How do we educate the health workforce effectively, so family caregivers receive timely and effective support?”

October 18, 2022 - Partnering with Family Caregivers. / “What approaches should we be using to build partnerships between healthcare providers and family caregivers?”

October 31, 2022 - Fostering Family Caregiver Resilience: Moving Beyond Telling Family Caregivers to “Take Care of Yourself”. / “What should a “better system” to support family caregivers include? Who needs to be involved?”

November 15, 2022 - Supporting Family Caregivers to Navigate Health and Community/Social Care Systems: Three Navigation Models. / “What is needed to help family caregivers navigate our systems of support and care?”

November 29, 2022 - Changing the Culture and Context of Care. / “What strategies and policies are needed to change the culture and context of care to support family caregivers?”

Each session will adhere to the following schedule:
12:00pm - 1:30pm (MST) - Speaker Presentations
1:30pm - 2:00pm (MST) - Optional participation in facilitated breakout sessions