Building a Better System to Support Canadian Family Caregivers (Conversation #4)
Presented by: Caregiver Centered Care
Conversation #4 Fostering Family Caregiver Resilience: Moving Beyond Telling Family Caregivers to “Take Care of Yourself”
OCTOBER 31, 2022 12:00 – 1:30 MST
Resilience is "the capacity to adapt successfully when faced with adversity." In developing the Caregiver-Centered Care Competency Framework, our stakeholders favored the use of a socio-ecological model of the resilience of building a better system of support around family caregivers so that they can adapt to all of those caregiving challenges along the care trajectory. A socio-ecological model of resilience will address the emotional, informational, and instrumental needs of family caregivers and will assist them as they adapt to the demands of their caregiving role. This webinar aims to answer the question, "What should a“better system” to support family caregivers include? Who needs to be involved?”
Speaker: Nancy Mannix, There is More to Resilience Than Being Told to ”Take Care of Yourself”: The Alberta Family Wellness Resiliency Scale
Nancy Mannix is the Chair and Patron of the Palix Foundation. This private foundation's philanthropy aims are to support improved health and wellness outcomes for all children and families. As resilience is a complex life outcome that is commonly misunderstood, a program of the Palix Foundation, the Alberta Family Wellness Initiative (AFWI) ), has developed a Resilience Scale metaphor. This scale demonstrates how resilience is not simply "pulling yourself up by your bootstraps," but rather, "how to build a better socio-ecological system to support resilience." Health Care providers are encouraged to use this tool to support family caregivers and families by building resilience. Importantly, this resilience is gained by supportive environments rich in serve-and-return interactions and by preventing experiences that may cause toxic stress.
Speaker: Dr. Kerry Kuluski, Moving Towards a Person-Centred Learning Health System: Family Caregivers Role in the Healthcare System
Kerry Kuluski MSW., PhD is the inaugural Dr. Mathias Gysler Research Chair in Patient & Family Centred Care at the Institute for Better Health, Trillium Health Partners. Kerry’s research provides insight into what matters most to patients with complex care needs and their caregivers. She works in partnership with patients and caregivers and has formed an advisory group to inform her research. With her patient and caregiver partners, she co-designed an intervention which addresses care and communication gaps.
Speaker: Liv Mendelsohn The Canadian Centre for Caregiving Excellence: A Vision for a Better Canadian System
Liv Mendelsohn, MA, MEd, is the executive director of the Canadian Centre for Caregiving Excellence. Over the course of her career, Liv has founded and helmed several organizations in the disability and caregiving space, including the Wagner Green Centre for Accessibility and Inclusion at the Miles Nadal JCC. In addition, she served as the founding artistic director at the Reel Abilities Toronto Film Festival and serves as the chair of the City of Toronto Accessibility Advisory Committee. In 2019 she was recognized as a recipient of the City of Toronto Equity Award and is a senior fellow at Massey College. Liv has been a lifelong caregiver and has the lived experience of disability.
What are the key elements needed to support family caregivers? Have your say by registering to Participate in a National Canadian Conversation.
September 20, 2022 - Recognizing the Family Caregiver Role. / “How do we improve recognition of family caregivers and the importance of the family caregiver role?”
October 4, 2022 - The Role of Education of Healthcare Providers to Support Family Caregivers: Elements of Effective Education. / “How do we educate the health workforce effectively, so family caregivers receive timely and effective support?”
October 18, 2022 - Partnering with Family Caregivers. / “What approaches should we be using to build partnerships between healthcare providers and family caregivers?”
October 31, 2022 - Fostering Family Caregiver Resilience: Moving Beyond Telling Family Caregivers to “Take Care of Yourself”. / “What should a “better system” to support family caregivers include? Who needs to be involved?”
November 15, 2022 - Supporting Family Caregivers to Navigate Health and Community/Social Care Systems: Three Navigation Models. / “What is needed to help family caregivers navigate our systems of support and care?”
November 29, 2022 - Changing the Culture and Context of Care. / “What strategies and policies are needed to change the culture and context of care to support family caregivers?”
Each session will adhere to the following schedule:
12:00pm - 1:30pm (MST) - Speaker Presentations
1:30pm - 2:00pm (MST) - Optional participation in facilitated breakout sessions.